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We're having an issue with my dad getting his medications correctly. He is 88 years old in stage 7 dementia. He gets Seroquel for sleeping 9:00 a.m., noon and 3:00 p.m. Not at all at night time, so he naps during the day and he's awake all night, wandering, and tearing up his room. I'm trying to get out the doors They are also not giving him his Zoloft or respridone, which is for his anxiety, until 6:00 p.m.


He's been in this facility for 2 weeks and we've had many talks with staff. Also had a meeting with the owner and staff member about this issue. He also acquired a bladder infection because he's not drinking enough water. Any thoughts or advice?

Meet with nursing director to tell you why he’s not getting his meds ..don’t wait till either he escapes, walks out or gets injured. They will probably tell you he refused them ..anything to CYA ..you have to show up unexpectedly and often at different times. It’s all new and different for your dad ..so he’s more confused probably..looking for his familiar surroundings ..you can ask them for medical records for the time he’s been there…Hugs 🤗
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I need more information. What is the mg that they give 3x a day? 25? 50? 100+? And does it say specifically for sleep? I could understand an afternoon and bedtime dose for sleep. But I don’t understand what that’s about. As for the Zoloft (antidepressant) and risperdol (for agitation, anxiety, behavior disturbances) is he possibly refusing those medications? My mother in law refuses her Zoloft and abilify every single day cause “she’s not crazy” so because of that, her behaviors are terrible.

someone had mentioned that seroquel is an antipsychotic. Risperdol is also an antipsychotic. HOWEVER- at certain doses it does not work like an antipsychotic. For instance, sleep. Also at certain mg doses, they can also work as mood stabilizers. I know this from personal experience and having a great psychiatrist and therapist. They let me know this because taking antipsychotics scared me to death- just the name “antipsychotics” is scary to me.

now is the time to start an open line of communication with the care team. Check in with them every day. Keep expressing the time change on medications. If they have an in-house doctor- ask them to schedule a visit ASAP. It’s best if you can be there during that visit so you can ask questions, ask them to clarify things you might not understand (why the seroquel during waking hours 3x a day instead of just at bedtime) if you don’t understand something, ask away! A good facility will participate in strong communication. If nothing changes in the next 2 or 3 weeks, then maybe it’s time to check out other places. And when you do that, be sure to talk to residents family members you see while you’re there and ask them if they’re happy with the facility, and have they ever had concerns and what did the care team do for them to rectify the concerns. I wish you good luck and some helpful answers!
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JooFroo Jan 27, 2025
Also- for some of these meds there are options for a monthly injection. I know there is not an injectable for Zoloft. But it’s a good thing to ask the doctor. No need for meds daily, just once a month
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Your father is not in a good facility. Who prescribed all these drugs to him? Was it his regular doctor or did some nursing home doctor who basically puts every resident on the same thing at the same time.

Demand to speak to whoever the prescriber is. Also, why are they giving him Zoloft for anxiety? Tell the doctor to write a prescription for Ativan that will be given to him as needed for anxiety.

They're drugging him up during the day to make work easier for the daytime staff and that is unacceptable. Make the prescriber of these drugs explain to you why they are administering them as they are.

Also, if your father isn't drinking enough water, why aren't they giving him coffee, or tea, or watered down juice, or soda? Maybe he doesn't want water.

Please don't let this facility get away with this lazy, and completely incompetent careplan. Go to your state's Ombudsman and tell them about it. Go to his regular primary care doctor and tell him too.
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Igloocar Jan 29, 2025
As you point out, Zooft is not normally used for anxiety. However, Ativan is a benzodiazepine, and benzos normally should not be given for more than a short time, especially in the elderly. I can't tell if her father is still mobile at all, but all the benzodiazepines increase fall risk, so if he i mobile, Ativan is not a good idea for that reason, also. A competent physician needs to look at the whole medication situation!
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I don't know if I'd put a specific 'day' or time limit on it.
It depends on specific circumstances and how your communications go with the dept director, their (or your dad's) MD on staff, and the facility administrator.

If you are not getting the quality or information you feel you need for his care, then I would make other arrangements - as what is the point of paying for his care if he isn't getting it?

If they are not receptive in a timely manner, then I would be very alerted.
So much also depends on the medical / condition of your dad.

I have had to contact the licensing board of a nursing home.
Initially I contacted the Ombudsman to help me. (This will take you too long ... to wait) although I would call the licensing board anyway and let them know of your concerns.

In the interim, if I were you (and able), I would hire a personal caregiver to be with him to ensure he is getting what he needs, such as medications, water, adequate attention from staff. Do BEFRIEND the line-staff, the aids --- they are often overworked and under-paid. Being 'nice' to them may help you/r dad get more attention. I would focus on the administrator, social worker, managers.

Gena / Touch Matters
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At least 30 days. It takes time to get a good care plan in effect and staff following it closely. This comes from a retired geriatric clinical staff member. Good Luck..
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I have also discussed similar issues with our Ombudsman and ask them to act as a liaison on behalf of my Dad. We request Care Plan Meetings with the facility to discuss the issues. I have gone this route, rather than filing a complaint with the state because I am able to visit regularly and in our situation there realistically is no other place that will be a better fit. If I go out of my way to make an effort I get a more positive response. Catching bees with honey. Care takers are under paid and over worked and I know it will be that way at other facilities in my area.
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I've heard of many dementia patients getting dehydrated because they won't drink enough water. They also typically love sweets so maybe get some flavorings to make him want to drink water? Pedialyte makes popsicles that are quite flavorful and would help with hydration. Perhaps you can drop off a box and instruct them to give them to him a couple times a day along with cold water since the sugar may also make him thirsty.
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Give them 2 more weeks. Ask them to "re-time" his medications on the MAR (medication administration record) to what you have written here. Realize that he will not get them exactly on time but should be more or less within an hour of the time. Ask them to also put him on a timed schedule to get water. He will need to have somebody make sure he drinks water since he probably won't drink the fresh water they place in front of him. Ask to review the MAR weekly.
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tmsmith: Seroquel is be given at night.
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Sisterbets Jan 27, 2025
My brother is prescribed Seroquel in the AM and PM. The larger dose PM
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Is this a memory care facility?
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You may need to contact your state’s Nursing Care Facilities ombudsman department and file a complaint. I’ve done this and they investigate quickly. My mother’s expenses are a guaranteed payment the facility can lose if she’s moved (24/7 care isn’t cheap). They need to be held accountable and reassess your father and his medication. I was fortunate that my complaint got the ball rolling and she’s been at her facility for over 2 1/2 years now.
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The person to talk to at the facility would be the nurse in charge.

If you are still not getting the results you expect, it is time to look for a new facility.

Actually, if you are able, the person to talk to would be the doctor who is prescribing the medications. That would include the time medication should be administered. The problem is, it is often a visiting doctor, who comes and goes on their own timeline, so you may not ever see them or know when they are going to be there.

You are right to advocate for your loved one in a nursing home. Your requests don't sound unreasonable. Some nursing homes simply aren't equipped with adequate staff to provide the level of care you ideally hope for.
If they are unable to provide the care your father needs and deserves, find one that can.
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cover9339 Jan 26, 2025
Not some, the majority
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First off, Seroquel is a strong "anti-psychotic" drug, with a side effect of sleepiness. Older folks often aren't prescribed it because of its strength and other possible complications....even the TV commercials say this. Being administered it at 9am, noon and 3pm (if true) is a recipe for disaster. You must address this issue ASAP!!!
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Gacast70 Jan 26, 2025
My mother has been taking seroquel 25 mg since 2012 after her stroke caused hallucinations (only one pill per day). They tried to increase it once when she said she started seeing people again and orange and purple dogs and she knew that she was seeing them because she would tell me I know I could see them and you can’t so they increased it and it was worse so they had to decrease it again. It could be that they’re over medicating the gentleman But this is the doctor's responsibility so she would need to speak to the doctors re-address his medication needs. Remember nursing homes are just that they have an in-house doctor however they just follow doctors orders and provide care and medication as prescribed.
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Does this facility use their own doctor? They should follow your dad's doctor's orders. If this facility isn't complying, look for another. Just make the decision soon.
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You have your answer. That is medical negligence. The fact that you have repeatedly brought it up and there are still problems means you can likely expect there is a culture of neglect or disorganization. I would not trust them, and I would find another place. They are negligent. Your dad as any human requiring medication and basic hydration requires medication and reasonably on time, as well as hydration. I think he is at risk and should be placed elsewhere.
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Sounds like you’ve answered your is. Question
they sound neglectful
i would be viewing and talking to other places and ask what their checks would be
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If you feel it is a bad fit Move him to a better facility and read reviews on YELP . People report negligence to Medicare and Propublica will write some reviews on YELP or ask that you report this to Medicare as neglect . Also ask your senior center which Facilities are Good .
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It's in the interests of everybody, and I would make this clear, that your dad's medications are given more near to the routine that has worked in the past to keep him calm. You have gone to the admins. And after this going to the HEAD have you still reviewed his medication records and found they are incorrect.

I would tell admin that you need another meeting and that the medical record should be there along with the medication sheets so that you can time the times of administration of his medications. Let them know you are trying to work WITH them so they have a more calm resident. (I am ASSUMING he is in MC, and not in ALF, as he needs memory care now).

If, after several meetings this isn't working you are looking at needing a change I do know that YOU already know Dad isn't an easy placement. And places DO cherry pick. In fact they often HOPE you will take a problematic resident elsewhere, and may throw a party as you exit. Just saying, this now is falling into the sad realm where there are no good answers and EVERYTHING is imperfect. Just a fact.

I sure wish you good luck and applaud your actions so far, which are perfect. You have investigated, found what is wanting, spoken to staff and spoken to the admins. While it may take a month or so to work this out, stay calm and assure them you are wanting to help get it arranged so it works for BOTH your self-interests.

Good luck. I hope you'll update us.
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CaringWifeAZ Jan 26, 2025
Thanks for pointing out the reality that care homes are in a position to pick the easiest residents, as there are more people in need of care than there are available beds. I appreciate this coming from your background and experience.
I am caring for my very difficult spouse at home - for 9 years now, because he has been neglected, over-medicated (which was ineffective), and subsequently kicked out of two nursing homes.
If I could pick and choose, I'd much rather have a sweet, cooperative,
90 pound grandmother to care for than a strong, heavy, combative 63 yr old man, who, incidentally does NOT respond well to medications.
At least a dozen ( I can't even remember to name them all) have been tried, with the result of making him even more anxious and agitated!
And the anti-psych medications had undesirable side effects! His head would turn from side to side, as if slowly shaking your head "NO" and this lasted at least 6 months after stopping the medication!
Now, I only give him Trazodone and depakote at bedtime, which are incredibly helpful, as long as he's not drugged during the daytime!

I SO wish I could find a care home (on my budget) with a staff to lovingly work with him and manage his behaviors and provide the care this once loving man so deserves! I hurt every day of life and I'm trying to do this as long as I can. I know once he's placed in a SNF, he will very likely be neglected and overdosed on morphine until it kills him. The thought of him being scared, confused and neglected by strangers is heart-wrenching for me! I have talked with his 3 sons about what they want to do when I can no longer do this. They have decided they would not try and care for him at home; he will have to go into a nursing home.
So, I just keep on trying.
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How do you know he isn't getting his meds correctly or at all? Is he telling you?
Are you assuming so based on his behavior?
Are you witnessing it?
How long has he been in this facility?
What type of facility is it?
Are you his MPoA?

If you're getting your info from your Dad, this may not be accurate. If he hasn't been in the facility very long (less than 2 months) and the meds are new for him, I'd give it at least 2 weeks to work, and if they adjust the prescription, then probably another week or 2. This is based on my own experience with my MIL in AL and then LTC.

Bladder infections (UTIs) aren't only caused by lack of water. Enlarged prostates happen in about 70% of older men, among other causes. Also hygiene, if he's in charge of his own this may need to be improved.

"Older men are more likely to get bladder infections, also known as urinary tract infections (UTIs), because of structural and functional changes in the urinary tract. These changes can make it difficult to empty the bladder completely, which can lead to bacteria building up. 

Causes:
- Enlarged prostate
- Benign prostatic hyperplasia (BPH) is a common condition that can make it difficult to empty the bladder. 
- Kidney stones (they can trap urine in the bladder)

Other conditions:
Diabetes, neurological disorders, and other chronic conditions can increase the risk of UTIs.
 
Weakened immune system

Diabetes, and other conditions can weaken the immune system, making it easier to get a UTI. 

Incomplete bladder emptying

Constipation can prevent the bladder from emptying properly. 

Prevention: 

Maintain proper hygiene, including regular bathing and thoroughly drying after cleaning

Stay hydrated to help get rid of bacteria

Practice emptying the bladder every 2-3 hours

Avoid becoming constipated"
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cover9339 Jan 26, 2025
There could be truth to this. Nurses in the facility (esp night nurses) doled out medications at various times. (One night nurse even did this at 10:30) Another night nurse would routinely do this after 9, she eventually started doing it earlier, but for a while it was at 9.

Good luck to OP finding a facility that will attend to dad's needs in a respectful manner.
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Is this Longterm care or Assisted Living/Memory care.

No medication can be given without a doctors prescription. Does the facility have all the prescriptions? Are you talking to the Director of Nursing?

When my Mom was in LTC I had to pick a doctor associated the facility. You need to find out how the doctors orders were written. The doctor may have changed things. Made adjustments felt other meds were not needed. The nurses can only give meds prescribed by the doctor. They can only give them at the times the Doctor ordered them. The facility must follow Doctor orders. The State will come in and check to make sure residents are getting their meds correctly. There is protocol that needs to be followed.

Water. With my Mom, they left a big cup on her table. The aides went around every so often and refilled. Did not do Mom any good, she was out in the common area most of the day. The aides did come around and give the residents water.

There is no one on one in a facility. Your Dad is not going to be cared for like you would have. Younay need to make sure Dad gets water while your there. My daughter, RN, works in NHs. I used to ask her what I should complain about and what not to. You will have to pick your battles. His meds are one of these battles.
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